Blog

Leading the Blind

On February 18th, 2011, our lives were changed forever when our son Christian Taylor Buchanan entered the world. He was born with a bilateral cleft palate and lip and almost completely blind. This blog is the story of his life, the joys we share, the challenges we encounter, and the amazing and trying journey ahead of our family!

Just The Way You Are - Introductory Article

Tuesday, November 29, 2011

Just The Way You Are

Welcome to the first piece in a series of articles on special needs, disability, and the people whose lives it affects. My name is Lacey Buchanan and I want to thank you for taking the time to allow me to share with you something that is near and dear to my heart. If you enjoy it, please continue to follow this column, as I will submit articles often. If you ever have any ideas, questions, or concerns please e-mail me at laceybuchanan@gmail.com.

                I would like to start my first piece with an excerpt from a story. In a children’s book by Lisa Tawn Bergrenm , a curious baby polar bear asks her mother where she came from, which leads into an adorable discussion about her mother’s pregnancy. “Umm, Mama? I was wondering . . . Did you ever want a different baby? One like Samuel the seal or Fredrika the fox?” “Never,” Mama said. “Never, ever, ever. Your Papa and I wouldn’t trade you for the world.” “Why?” Little Cub asked. “Why? Because God gave us you.”

             Having a child is one of the greatest joys in life. But sometimes, that joy can turn quickly into other emotions, such as fear, sorrow, mourning, depression, and anxiety to name a few. Why, you ask? Nothing can break an expecting couple’s heart more than a phone call from the doctor with news that they are concerned about the health of the unborn child. I know, because in August of 2010, my husband and I received that call. Six months later, a bouncing baby boy, Christian Taylor Buchanan, was born to us. He was diagnosed with blindness in both eyes, a Tessier cleft lip and palate, a clubbed foot, a hypospadias, and a cutis aplasia on his skull (if you don’t know what these are, just Google them).

             We were devastated to say the least, but that is not why I am writing this article. It has been since Christian’s birth that I have come to realize how little most people know about disabilities, the lives of people who live with disabilities, or how to handle situations in which they come in contact with someone who is disabled.

              It is also astounding to me the lack of compiled information on the topic for people who need to be educated on the subject. Even as Christian came home from the hospital and we were sorting out how to make sure he had all of his medical supplies, got the medical care he needed, and even just how to do the proper things to make sure he developed correctly, I found that all of the information I came upon happened by chance.

               For these reasons, I asked the Cannon Courier if I could, and they so graciously allowed me, to write an article so that I can do my part to educate the public and to help those seeking out information on the subject to find what they need.

            How did all of this come about, you might ask? It all began when I started taking Christian out to places in the normal course of our daily lives, such as the grocery store or a restaurant. It didn’t matter where we went really, we always received the same reaction. People would stare at Christian, whisper behind my back “Look at that baby,” and some even got the courage to ask me what was wrong with him. It got to the point where I would put a blanket over his carrier, and when people asked to see the baby, I simply refused. Then one day, I changed my mind. I was not going to hide the face of my child, the child that I thought was the most beautiful thing I had ever laid eyes on. Although I realized the severity of his facial deformities, I knew it wasn’t me who needed to change what I was doing, but others that needed to change the way they thought about people with disabilities.

                And so, for Christian, and for every other person out there who has to live with a confinement that most of us will never know and wouldn’t have the strength to bear, I am fighting. I am fighting for the stares to turn into smiles. I am fighting for the whispers to turn into words of encouragement. I am fighting for the “What’s wrong with your kid?” questions to turn into respectful, caring questions. I am fighting so that those who live with a disability will feel like they belong in this society, not as outcasts who are looked down upon. I am fighting so that they may know that they are as important as anyone else, so that they may know that they are as valuable as someone who has perfect use of their legs, or eyes, or mind, because I believe with all my heart that these things are true.

              So about that children’s story that I introduced at the beginning of this article, I never got around to telling you the point. I read this story to my son last night and it resonated with me. No matter what difficulties we have to face, and no matter what things my son will never be able to do, I would never, ever, ever want another child instead. Why? Because God gave us Christian.

Just The Way You Are

Tuesday, November 29, 2011

As Christian grew and I became more accustomed to raising a child, and raising a special child, I learned not only about the many joys that come with, but the pains as well. Many of those pains are unavoidable, such as watching Christian go through surgery. But many we encounter have been brought on by people who meant no harm, but didn't ...

READ POST

Growing

Monday, November 7, 2011

The last few months have been so fun and full of adventure for Christian and I. Besides being incredibly busy with life, school, and work, we have also been busy being a family and watching Christian grow up. I have started an article in the local paper that advocates disability and those who have one. My main goal is to ...

READ POST

What pain really feels like

Thursday, July 14, 2011

I thought I knew what pain was. I remember how nervous I was the morning we went to Vanderbilt to have Christian. I was so scared because I knew what could happen. I knew what the doctors had said. I knew that it was going to be hard. When Christian was born at 9:32am, I was so happy. I was ...

READ POST

Team Christian Block Party and Car Show

Monday, May 23, 2011

Some wonderful friends of mine got an idea one day that they wanted to help me and Chris ou and raise some money for us, so they came up with the idea of a car show in Woodbury. After they got the square reserved for the day, everything started coming together. They decided to have t-shirts made to sell, and ...

READ POST

Going Home: Our NICU Experience

Tuesday, May 3, 2011

March 15, 2011 was a fantastic day. I was finally getting to take Christian home from the Vanderbilt NICU. But to get to that point was grueling, exhausting, and heart breaking. To describe briefly the experience of having a child in a NICU, it's like watching someone you love be imprisoned. You know that them being there is what's best ...

READ POST

Blog

Leading the Blind

Just The Way You Are - Introductory Article

Just The Way You Are

Growing

What pain really feels like

Team Christian Block Party and Car Show

Going Home: Our NICU Experience

QUICK LINKS